Transitional Care in Anorectal Malformation and Hirschsprung's Disease
Timestops (9)
Tools Used
Topic Overview
New article you should know from th Journal of pediatric Surgery by Dr. Cecilia Gigena
"Transitional Care in Anorectal Malformation and Hirschsprung's Disease: A Systematic Review of Challenges and Solutions"
Authors: Josip Plascevic, Shaneel Shah, Yew-Wei Tan
Full article: https://gcmd.co/3WHxvKX
Background
The literature on transitional care in anorectal malformation (ARM) and Hirschsprung's disease (HD) is diverse and heterogeneous. There is a lack of standards and guidelines specific to transitional care in these conditions. We aim to establish and systematically categorize challenges and solutions related to colorectal transition care.
Methods
Systematic review of qualitative studies from MEDLINE, EMBASE, PubMed and Scopus databases (2008–2022) was conducted to identify the challenges and solutions of healthcare transition specific to ARM and HD. Thematic analyses are reported with reference to patient, healthcare provider and healthcare system.
Results
Sixteen studies from 234 unique articles were included. Fourteen themes related to challenges and solutions, each, are identified. Most challenges identified are patient related. The key challenges pertain to: (1) patient's lack of understanding of their disorder, resulting in over-reliance on the pediatric surgical team and reluctance towards transitioning to adult services; (2) a lack of education and awareness among adult colorectal surgeons in caring for pediatric colorectal conditions and inadequate communication between pediatric and adult teams; and (3) a lack of structured transition program and joint-clinic to meet the needs of the transitioning patients. The key solutions are: (1) fostering young adult patient's autonomy and independence; (2) conducting joint pediatric-adult transition clinics; and (3) ensuring a structured and coordinated transition program is available using a standardized guideline.
Conclusion
A comprehensive framework related to barriers and solutions for pediatric colorectal transition is established to help benchmark care quality of transitional care services.
Keywords
Hashtags
Transcript
Do you have a transitional care coordinator for colorectal patients in your hospital? Hi, I'm Cecily Hekin from Cincinnati Children's Hospital and I think this is an article that you should know about. This is a systematic review done in the UK and their aim was to establish and categorize challenges and solutions related to transitional care in colorectal patients. They included 234 studies and established three challenges and solutions. The challenges were first, the patient's lack of understanding of their own pathology. The second one was the lack of education and awareness of adult surgeons about pediatric colorectal pathologies. And the third was the lack of an structured transitional care program. So for the solutions they proposed. First, to foster young adult patient's autonomy, two, to conduct joint pediatric adult transitional clinics, and three, to create a structured and coordinated transition program. Let us know what you think and stay tuned for more articles that you should know about.