Clinical Care Trajectory Assessment of Children With Congenital Diaphragmatic Hernia and Neurodevelopmental Impairment
Author / Expert
Alexandra Dimmer, Gabriel Altit, Sabrina Beauseigle, Elena Guadagno, Louise Koclas, Katryn Paquette, Ana Sant’Anna, Adam Shapiro, Dan Poenaru, Pramod Puligandla
Topic overview
Interdisciplinary long-term health surveillance identifies opportunities to mitigate CDH-related multisystem morbidity, particularly in patients with neurodevelopmental impairment (NDI). However, no studies to date have assessed the impact of these morbidities on the patient/family. Our aim was to describe the clinical trajectory of patients with CDH and NDI (CDH-NDI), and to explore the lived experience and satisfaction of families with existing support resources.
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