Anorectal Malformation Patients in Australia and Europe: Different Location, Same Problem? A Retrospective Comparative Registry-Based Study
Author / Expert
Isabel C. Hageman, Misel Trajanovska, Sebastian K. King, Hendrik JJ. van der Steeg, Anna Morandi, Eva E. Amerstorfer, Ivo de Blaauw, Iris ALM. van Rooij, ARM-Net Consortium
Topic overview
Anorectal malformations (ARM) encompass a spectrum of rare congenital defects of the rectum and anus, requiring specialized reconstructive surgery. To improve epidemiological and clinical research in rare diseases such as ARM, collaborative efforts and patient registries are key.This retrospective study pools clinical data over a 30-year period from two ARM patient registries (The Royal Children's Hospital (RCH) in Melbourne, Australia, and the ARM-Network Consortium in Europe). It aims to draw comparisons on demographics, management, and outcomes between ARM patients in Australia and Europe.
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