Parent-Reported Health-Related Quality of Life Outcomes and Impact on Family of Congenital Diaphragmatic Hernia Survivors After Repair: A Cross-Sectional Comparison to Healthy Controls
Topic overview
This cross-sectional study compares parent-reported health-related quality of life and family impact between CDH survivors and healthy controls. The research addresses long-term outcomes beyond survival, examining how chronic CDH-associated morbidities affect both patient well-being and family functioning after surgical repair.
Key takeaways
- CDH survivors experience long-term morbidities affecting musculoskeletal, gastrointestinal, and respiratory systems beyond initial repair.
- Parent-reported HRQOL provides critical insight into the real-world burden of CDH on pediatric survivors post-operatively.
- Family impact assessment is essential for comprehensive CDH care, as chronic morbidities affect entire family units.
- Cross-sectional comparison to healthy controls helps quantify the specific HRQOL deficits attributable to CDH.
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How to cite: GlobalCastMD. Parent-Reported Health-Related Quality of Life Outcomes and Impact on Family of Congenital Diaphragmatic Hernia Survivors After Repair: A Cross-Sectional Comparison to Healthy Controls. GlobalCastMD Medical Library. 2023-12-07. https://library.globalcastmd.com/article/8281
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