Transition of Care - Patients' point of view

Space: EUPSA/ERNICA Author: EUPSA/ERNICA Published: 2023-11-15

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EUPSA/ERNICA

Transition of Care - Patients' point of view podcast cover art

Topic overview

Video on the patients' point of view (Chapter 3 of the Helsinki series). ERNICA (https://ern-ernica.eu/)

Keywords

transition of care congenital anomalies Hirschsprung disease long-term follow-up pediatric care adult care patient organization healthcare provision quality of life patient representatives medical support emotional relationship healthcare guidelines rare diseases patient pathway independence social life psychological burden healthcare professionals lifelong follow-up

Hashtags

#TransitionOfCare #CongenitalAnomalies #HirschsprungDisease #LongTermFollowUp #PediatricCare #AdultCare #PatientOrganization #HealthcareProvision #QualityOfLife #PatientAdvocacy #MedicalSupport #EmotionalHealth #HealthcareGuidelines #RareDiseases #PatientPathway #Independence #SocialLife #PsychologicalBurden #LifelongFollowUp

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