ERNICA Research Collaboration Webinar on Quality of Life

Topic overview

The aim of the webinar is to provide an overview of the concepts “patient-reported outcome, quality of life and health-related quality of life” and how the quality of life (QoL) and health-related quality of life (HRQoL) have been evaluated in populations with the need for advanced pediatric surgery. The benefits of measuring QoL/HRQoL in patients for care and research will become apparent. We would like to conclude with a view from the speakers and the audience on gaps in knowledge within advanced pediatric surgery and future directions.

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