Long-term feeding issue and its impact on the daily life of congenital diaphragmatic hernia survivors: results of the first patient-led survey

Patient-led survey of 151 CDH survivors reveals 77% experience feeding issues, predominantly gastric reflux (91.5%) and growth retardation (62.2%). Despite 75% reporting satisfaction with support, 76% describe the experience as very/extremely stressful, with only 17% receiving written feeding guidance or support resources.