Patient-Reported Long-Term Gastrointestinal Outcomes in Children with Omphalocele and Gastroschisis: A PedsQL GI Module Study
Topic overview
This study systematically evaluates long-term gastrointestinal symptoms in children treated for omphalocele and gastroschisis using the validated PedsQL GI Module questionnaire. Researchers compared patient-reported outcomes from affected children (treated 1999-2022) against healthy controls to quantify ongoing GI burden and address previous methodological inconsistencies in outcomes measurement.
Key takeaways
- Children with omphalocele and gastroschisis report ongoing GI symptoms years after repair, indicating need for long-term follow-up.
- PedsQL GI Module provides standardized measurement of GI outcomes, addressing previous study heterogeneity in this population.
- Patient-reported outcomes differ from healthy controls, suggesting persistent functional GI burden beyond surgical correction.
- Validated questionnaires enable systematic comparison across centers and improve understanding of long-term quality of life.
- Both parent proxy-reports and child self-reports capture age-appropriate perspectives on chronic GI symptoms post-repair.
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How to cite: GlobalCastMD. Patient-Reported Long-Term Gastrointestinal Outcomes in Children with Omphalocele and Gastroschisis: A PedsQL GI Module Study. GlobalCastMD Medical Library. 2026-03-12. https://library.globalcastmd.com/article/11671
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