Some children are evaluated and can potty train with oral regimen; others without good continence potential start on enemas immediately. Some on enemas for years can later come off enemas and potty train when they have more maturity and buy-in, depending on anatomy.
Bowel management program starts when parent feels child needs to be in normal underwear (typically preschool/kindergarten age when peers are in underwear), not at a hard age cutoff; this can be age 3, 4, or later if child is home and not socially engaged yet.
Many patients referred for bowel resection have tried enemas/laxatives at doses based on age, weight, or manufacturer recommendations, but severe constipation often requires much higher doses than outlined; additional treatment may still achieve success.
When colonic manometry proves lower bowel has poor contraction, colostomy on upper colon allows lower colon to rest; after 6 months to 1 year (sometimes 2 years), repeat manometry checks if bowel has recovered motility, then colostomy can be closed.
Patients with almost all large bowel removed may achieve cleanliness on enemas but require very regimented diet (avoiding laxative foods, high-sugar drinks) and multiple daily Imodium doses; some choose stoma over this quality-of-life burden.
Bowel Management Updates & Innovations with Live Q&A: April 2018
▶Ep 2 · 9:11
clinicalTo reduce enema-related nausea, give enema prior to meals or about an hour after a meal to allow digestion, avoiding administration right after a full meal when stomach distention plus bowel filling causes nausea.↗
▶Ep 2 · 9:32
clinicalIn cecostomy patients, if enema solution flows too fast or goes into small bowel instead of colon, it can cause vomiting; a study can track solution flow to diagnose this.↗
▶Ep 2 · 9:56
clinicalWarming enema solution and ensuring irritant is not too strong for the child helps reduce vomiting; additive and volume must be adjusted to treat symptoms.↗
▶Ep 2 · 10:18
clinicalEnema solution should be given over at least 5 minutes, sometimes 10–15 minutes, to avoid rapid distention and vomiting.↗
▶Ep 2 · 12:41
clinicalMaximum enema volume is tailored to colon size based on contrast enema study; typically upper limit is around 500 mL for rectal and cecostomy/Malone enemas, occasionally slightly higher but rarely.↗
▶Ep 2 · 15:27
clinicalPatients with almost all large bowel removed may achieve cleanliness on enemas but require very regimented diet (avoiding laxative foods, high-sugar drinks) and multiple daily Imodium doses; some choose stoma over this quality-of-life burden.↗
▶Ep 2 · 23:02
clinicalMany patients referred for bowel resection have tried enemas/laxatives at doses based on age, weight, or manufacturer recommendations, but severe constipation often requires much higher doses than outlined; additional treatment may still achieve success.↗
▶Ep 2 · 24:02
clinicalThere is no research showing scary outcomes from long-term Senna (Ex-Lax) use; patients may need dose increases or decreases over time based on diet, exercise, and hormonal changes.↗
▶Ep 2 · 24:45
clinicalLong-term Senna use causes melanosis coli (freckling appearance on colonoscopy) but no other long-term side effects beyond this visual finding.↗
▶Ep 2 · 26:16
clinicalExcessive laxative dose causes diarrhea; laxative use must be adjusted and monitored by healthcare provider.↗
▶Ep 2 · 28:52
clinicalPatients with colostomy can still suffer from constipation and may require stool softener or laxative for daily colostomy output.↗
▶Ep 2 · 29:19
clinicalWhen colonic manometry proves lower bowel has poor contraction, colostomy on upper colon allows lower colon to rest; after 6 months to 1 year (sometimes 2 years), repeat manometry checks if bowel has recovered motility, then colostomy can be closed.↗
▶Ep 2 · 31:16
clinicalCone enemas are not routinely used in the Cincinnati program, but if patients are already using them successfully, the team will adjust enema ingredients within that delivery system.↗
▶Ep 2 · 32:11
clinicalEnema-related pain requires evaluation for injury from enema device (fissures, cuts, ulcers in anal region) and also consideration of other abdominal organ causes (appendix, gallbladder) to avoid missing non-constipation diagnoses.↗
▶Ep 2 · 33:27
clinicalPeristeen device was originally designed for spina bifida patients, with features for those with limited finger dexterity or arm use; requires physician order and education for independent use.↗
▶Ep 2 · 34:08
clinicalPeristeen has better success in patients age 8 or older; younger patients (under 8) had difficulty keeping the balloon device in the rectum.↗
▶Ep 2 · 34:33
clinicalPeristeen insurance coverage is challenging; insurance companies typically deny initially because product is not widely used in US, requiring appeal letters and significant paperwork from healthcare provider.↗
▶Ep 2 · 39:22
clinicalUrinary symptom improvement with sacral nerve stimulator often exceeds the manufacturer's 50% improvement threshold.↗
▶Ep 2 · 40:05
clinicalSacral nerve stimulator has approximately 4 different programs; if symptoms return over time, the program can be changed within the implant to regain success.↗
▶Ep 2 · 41:31
clinicalNew bedtime wetting in a patient previously clean on bowel management is suspected to be constipation; this is checked first before other evaluation.↗
▶Ep 2 · 43:14
guidelineFemale anorectal malformation patients should see a gynecologist for reproductive health evaluation and examination.↗
▶Ep 2 · 45:32
clinicalAny enema irritant (glycerin, castile soap) must be monitored; if patient produces mucus when stooling, consider if bowel is over-irritated and dial back additives or change product.↗
▶Ep 2 · 46:55
clinicalFleet phosphate enema must be avoided in patients with any renal injury or kidney trouble.↗
▶Ep 2 · 50:49
clinicalPatients with deformed sacrum have a range of anatomy; some still have continence potential despite sacral deformity on paper.↗
▶Ep 2 · 51:15
clinicalFor very deformed sacrum not suitable for sacral nerve stimulator, best option is enema (rectal, Malone, cecostomy, or Peristeen).↗
▶Ep 2 · 52:52
clinicalChildren with normal anatomy typically potty train between 2.5 to 3.5 years, sometimes even 4 years; this varies by culture and location. Boys tend to potty train later than girls.↗
▶Ep 2 · 53:33
clinicalBowel management program starts when parent feels child needs to be in normal underwear (typically preschool/kindergarten age when peers are in underwear), not at a hard age cutoff; this can be age 3, 4, or later if child is home and not socially engaged yet.↗
▶Ep 2 · 54:22
clinicalSome children are evaluated and can potty train with oral regimen; others without good continence potential start on enemas immediately. Some on enemas for years can later come off enemas and potty train when they have more maturity and buy-in, depending on anatomy.↗
▶Ep 2 · 56:14
clinicalPatients with right anatomy for potty training may fail due to inadequate treatment; severe constipation causes stool leaking around impaction without sensation, so adequate treatment allows normal potty training.↗
Monica's statements about Colorectal / ARM & Hirschsprung29 statements
Bowel Management Updates & Innovations with Live Q&A: April 2018
▶Ep 2 · 9:11
clinicalTo reduce enema-related nausea, give enema prior to meals or about an hour after a meal to allow digestion, avoiding administration right after a full meal when stomach distention plus bowel filling causes nausea.↗
▶Ep 2 · 9:32
clinicalIn cecostomy patients, if enema solution flows too fast or goes into small bowel instead of colon, it can cause vomiting; a study can track solution flow to diagnose this.↗
▶Ep 2 · 9:56
clinicalWarming enema solution and ensuring irritant is not too strong for the child helps reduce vomiting; additive and volume must be adjusted to treat symptoms.↗
▶Ep 2 · 10:18
clinicalEnema solution should be given over at least 5 minutes, sometimes 10–15 minutes, to avoid rapid distention and vomiting.↗
▶Ep 2 · 12:41
clinicalMaximum enema volume is tailored to colon size based on contrast enema study; typically upper limit is around 500 mL for rectal and cecostomy/Malone enemas, occasionally slightly higher but rarely.↗
▶Ep 2 · 15:27
clinicalPatients with almost all large bowel removed may achieve cleanliness on enemas but require very regimented diet (avoiding laxative foods, high-sugar drinks) and multiple daily Imodium doses; some choose stoma over this quality-of-life burden.↗
▶Ep 2 · 23:02
clinicalMany patients referred for bowel resection have tried enemas/laxatives at doses based on age, weight, or manufacturer recommendations, but severe constipation often requires much higher doses than outlined; additional treatment may still achieve success.↗
▶Ep 2 · 24:02
clinicalThere is no research showing scary outcomes from long-term Senna (Ex-Lax) use; patients may need dose increases or decreases over time based on diet, exercise, and hormonal changes.↗
▶Ep 2 · 24:45
clinicalLong-term Senna use causes melanosis coli (freckling appearance on colonoscopy) but no other long-term side effects beyond this visual finding.↗
▶Ep 2 · 26:16
clinicalExcessive laxative dose causes diarrhea; laxative use must be adjusted and monitored by healthcare provider.↗
▶Ep 2 · 28:52
clinicalPatients with colostomy can still suffer from constipation and may require stool softener or laxative for daily colostomy output.↗
▶Ep 2 · 29:19
clinicalWhen colonic manometry proves lower bowel has poor contraction, colostomy on upper colon allows lower colon to rest; after 6 months to 1 year (sometimes 2 years), repeat manometry checks if bowel has recovered motility, then colostomy can be closed.↗
▶Ep 2 · 31:16
clinicalCone enemas are not routinely used in the Cincinnati program, but if patients are already using them successfully, the team will adjust enema ingredients within that delivery system.↗
▶Ep 2 · 32:11
clinicalEnema-related pain requires evaluation for injury from enema device (fissures, cuts, ulcers in anal region) and also consideration of other abdominal organ causes (appendix, gallbladder) to avoid missing non-constipation diagnoses.↗
▶Ep 2 · 33:27
clinicalPeristeen device was originally designed for spina bifida patients, with features for those with limited finger dexterity or arm use; requires physician order and education for independent use.↗
▶Ep 2 · 34:08
clinicalPeristeen has better success in patients age 8 or older; younger patients (under 8) had difficulty keeping the balloon device in the rectum.↗
▶Ep 2 · 34:33
clinicalPeristeen insurance coverage is challenging; insurance companies typically deny initially because product is not widely used in US, requiring appeal letters and significant paperwork from healthcare provider.↗
▶Ep 2 · 39:22
clinicalUrinary symptom improvement with sacral nerve stimulator often exceeds the manufacturer's 50% improvement threshold.↗
▶Ep 2 · 40:05
clinicalSacral nerve stimulator has approximately 4 different programs; if symptoms return over time, the program can be changed within the implant to regain success.↗
▶Ep 2 · 41:31
clinicalNew bedtime wetting in a patient previously clean on bowel management is suspected to be constipation; this is checked first before other evaluation.↗
▶Ep 2 · 43:14
guidelineFemale anorectal malformation patients should see a gynecologist for reproductive health evaluation and examination.↗
▶Ep 2 · 45:32
clinicalAny enema irritant (glycerin, castile soap) must be monitored; if patient produces mucus when stooling, consider if bowel is over-irritated and dial back additives or change product.↗
▶Ep 2 · 46:55
clinicalFleet phosphate enema must be avoided in patients with any renal injury or kidney trouble.↗
▶Ep 2 · 50:49
clinicalPatients with deformed sacrum have a range of anatomy; some still have continence potential despite sacral deformity on paper.↗
▶Ep 2 · 51:15
clinicalFor very deformed sacrum not suitable for sacral nerve stimulator, best option is enema (rectal, Malone, cecostomy, or Peristeen).↗
▶Ep 2 · 52:52
clinicalChildren with normal anatomy typically potty train between 2.5 to 3.5 years, sometimes even 4 years; this varies by culture and location. Boys tend to potty train later than girls.↗
▶Ep 2 · 53:33
clinicalBowel management program starts when parent feels child needs to be in normal underwear (typically preschool/kindergarten age when peers are in underwear), not at a hard age cutoff; this can be age 3, 4, or later if child is home and not socially engaged yet.↗
▶Ep 2 · 54:22
clinicalSome children are evaluated and can potty train with oral regimen; others without good continence potential start on enemas immediately. Some on enemas for years can later come off enemas and potty train when they have more maturity and buy-in, depending on anatomy.↗
▶Ep 2 · 56:14
clinicalPatients with right anatomy for potty training may fail due to inadequate treatment; severe constipation causes stool leaking around impaction without sensation, so adequate treatment allows normal potty training.↗
Monica's statements about Hirschsprung disease29 statements
Bowel Management Updates & Innovations with Live Q&A: April 2018
▶Ep 1 · 9:11
clinicalTo reduce enema-related nausea, give enema prior to meals or about an hour after a meal to allow digestion, avoiding administration right after a full meal when stomach distention plus bowel filling causes nausea.↗
▶Ep 1 · 9:32
clinicalIn cecostomy patients, if enema solution flows too fast or goes into small bowel instead of colon, it can cause vomiting; a study can track solution flow to diagnose this.↗
▶Ep 1 · 9:56
clinicalWarming enema solution and ensuring irritant is not too strong for the child helps reduce vomiting; additive and volume must be adjusted to treat symptoms.↗
▶Ep 1 · 10:18
clinicalEnema solution should be given over at least 5 minutes, sometimes 10–15 minutes, to avoid rapid distention and vomiting.↗
▶Ep 1 · 12:41
clinicalMaximum enema volume is tailored to colon size based on contrast enema study; typically upper limit is around 500 mL for rectal and cecostomy/Malone enemas, occasionally slightly higher but rarely.↗
▶Ep 1 · 15:27
clinicalPatients with almost all large bowel removed may achieve cleanliness on enemas but require very regimented diet (avoiding laxative foods, high-sugar drinks) and multiple daily Imodium doses; some choose stoma over this quality-of-life burden.↗
▶Ep 1 · 23:02
clinicalMany patients referred for bowel resection have tried enemas/laxatives at doses based on age, weight, or manufacturer recommendations, but severe constipation often requires much higher doses than outlined; additional treatment may still achieve success.↗
▶Ep 1 · 24:02
clinicalThere is no research showing scary outcomes from long-term Senna (Ex-Lax) use; patients may need dose increases or decreases over time based on diet, exercise, and hormonal changes.↗
▶Ep 1 · 24:45
clinicalLong-term Senna use causes melanosis coli (freckling appearance on colonoscopy) but no other long-term side effects beyond this visual finding.↗
▶Ep 1 · 26:16
clinicalExcessive laxative dose causes diarrhea; laxative use must be adjusted and monitored by healthcare provider.↗
▶Ep 1 · 28:52
clinicalPatients with colostomy can still suffer from constipation and may require stool softener or laxative for daily colostomy output.↗
▶Ep 1 · 29:19
clinicalWhen colonic manometry proves lower bowel has poor contraction, colostomy on upper colon allows lower colon to rest; after 6 months to 1 year (sometimes 2 years), repeat manometry checks if bowel has recovered motility, then colostomy can be closed.↗
▶Ep 1 · 31:16
clinicalCone enemas are not routinely used in the Cincinnati program, but if patients are already using them successfully, the team will adjust enema ingredients within that delivery system.↗
▶Ep 1 · 32:11
clinicalEnema-related pain requires evaluation for injury from enema device (fissures, cuts, ulcers in anal region) and also consideration of other abdominal organ causes (appendix, gallbladder) to avoid missing non-constipation diagnoses.↗
▶Ep 1 · 33:27
clinicalPeristeen device was originally designed for spina bifida patients, with features for those with limited finger dexterity or arm use; requires physician order and education for independent use.↗
▶Ep 1 · 34:08
clinicalPeristeen has better success in patients age 8 or older; younger patients (under 8) had difficulty keeping the balloon device in the rectum.↗
▶Ep 1 · 34:33
clinicalPeristeen insurance coverage is challenging; insurance companies typically deny initially because product is not widely used in US, requiring appeal letters and significant paperwork from healthcare provider.↗
▶Ep 1 · 39:22
clinicalUrinary symptom improvement with sacral nerve stimulator often exceeds the manufacturer's 50% improvement threshold.↗
▶Ep 1 · 40:05
clinicalSacral nerve stimulator has approximately 4 different programs; if symptoms return over time, the program can be changed within the implant to regain success.↗
▶Ep 1 · 41:31
clinicalNew bedtime wetting in a patient previously clean on bowel management is suspected to be constipation; this is checked first before other evaluation.↗
▶Ep 1 · 43:14
guidelineFemale anorectal malformation patients should see a gynecologist for reproductive health evaluation and examination.↗
▶Ep 1 · 45:32
clinicalAny enema irritant (glycerin, castile soap) must be monitored; if patient produces mucus when stooling, consider if bowel is over-irritated and dial back additives or change product.↗
▶Ep 1 · 46:55
clinicalFleet phosphate enema must be avoided in patients with any renal injury or kidney trouble.↗
▶Ep 1 · 50:49
clinicalPatients with deformed sacrum have a range of anatomy; some still have continence potential despite sacral deformity on paper.↗
▶Ep 1 · 51:15
clinicalFor very deformed sacrum not suitable for sacral nerve stimulator, best option is enema (rectal, Malone, cecostomy, or Peristeen).↗
▶Ep 1 · 52:52
clinicalChildren with normal anatomy typically potty train between 2.5 to 3.5 years, sometimes even 4 years; this varies by culture and location. Boys tend to potty train later than girls.↗
▶Ep 1 · 53:33
clinicalBowel management program starts when parent feels child needs to be in normal underwear (typically preschool/kindergarten age when peers are in underwear), not at a hard age cutoff; this can be age 3, 4, or later if child is home and not socially engaged yet.↗
▶Ep 1 · 54:22
clinicalSome children are evaluated and can potty train with oral regimen; others without good continence potential start on enemas immediately. Some on enemas for years can later come off enemas and potty train when they have more maturity and buy-in, depending on anatomy.↗
▶Ep 1 · 56:14
clinicalPatients with right anatomy for potty training may fail due to inadequate treatment; severe constipation causes stool leaking around impaction without sensation, so adequate treatment allows normal potty training.↗