Parent-Reported Health-Related Quality of Life Outcomes and Impact on Family of Congenital Diaphragmatic Hernia Survivors After Repair: A Cross-Sectional Comparison to Healthy Controls

In brief

This cross-sectional study compares parent-reported health-related quality of life and family impact between CDH survivors and healthy controls. The research addresses long-term outcomes beyond survival, examining how chronic CDH-associated morbidities affect both patient well-being and family functioning after surgical repair.

• CDH survivors experience long-term morbidities affecting musculoskeletal, gastrointestinal, and respiratory systems beyond initial repair.
• Parent-reported HRQOL provides critical insight into the real-world burden of CDH on pediatric survivors post-operatively.
• Family impact assessment is essential for comprehensive CDH care, as chronic morbidities affect entire family units.
• Cross-sectional comparison to healthy controls helps quantify the specific HRQOL deficits attributable to CDH.

Written by the GCMD Library team from the article.