Healthcare Transition for Patients with Differences of Sexual Development and Complex Urogenital Conditions
sciencedirect.com shows its articles on its own site.
Read the article on sciencedirect.com ↗Article · Oct 2019 · 1 min read
In brief
In brief
This article examines the critical process of transitioning patients with disorders of sex development and complex urogenital conditions from pediatric to adult care. It emphasizes the need for structured transitional care programs that prepare young adults to manage their own healthcare needs and navigate adult medical systems, preventing gaps in care that can compromise lifelong outcomes.
Written by the GCMD Library team from the article.
Publication date: Available online 13 September 2019
Source: Seminars in Pediatric Surgery
Author(s): Veenod L. Chulani, Veronica Gomez-Lobo, Stephanie J. Kielb, Gwen M. Grimsby
Abstract
Children with major congenital anomalies are able to obtain a high level of care in pediatric care settings. In contrast, adult care models emphasize patient responsibility in ensuring their health care needs are met. As patients make this transition, they may fall through the medical “safety net” and struggle to find quality care because of their lack of preparation. Transitional care, including tailored and purposeful medical and social support services, can serve as a bridge across systems and facilitate the safe and effective transfer of young adults with special health care needs from pediatric to adult care. Transitional care prepares youth to manage their own care, effectively use health services, and navigate the shift from distinctly different pediatric to adult models of health care. For unique patient populations such as those with disorders of sexual development and congenital genitourinary conditions, this preparation is vitally important to maximize lifelong functioning and well-being.