Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature
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In brief
In brief
This review examines health-related quality of life in patients with bladder exstrophy-epispadias complex, focusing on how urinary incontinence and sexual dysfunction impact long-term outcomes. The analysis covers recent literature from 2015-2019 and highlights the need for validated condition-specific HRQOL measurement tools.
Written by the GCMD Library team from the article.
The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015–2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.