Adaptation, Translation, and Validation of a Patient-Reported Experience Measure for Children and Young People for the Canadian Context

In brief

This validation study adapted a UK-developed patient-reported experience measure (PREM) for Canadian pediatric outpatient settings, addressing the lack of North American instruments that capture children's own perceptions of their healthcare experience. The work provides a culturally and linguistically validated tool for measuring pediatric care quality from the patient perspective.

• Patient-reported experience measures (PREMs) capture children's own perceptions of their healthcare quality and experience.
• A UK-developed pediatric PREM was successfully adapted for Canadian context, addressing the gap in North American instruments.
• Linguistic validation ensures the translated instrument maintains clinical relevance across different healthcare systems and cultures.
• Pediatric outpatient settings can now use a validated tool to systematically assess care quality from the child's perspective.
• Cross-cultural adaptation of PREMs requires careful translation and validation to preserve measurement properties and clinical utility.

Written by the GCMD Library team from the article.