A survey of adults with anorectal malformations: perspectives on educational, vocational, and psychosocial experiences
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Read the article on link.springer.com ↗Article · Jul 2019 · 1 min read
In brief
In brief
Survey of 125 adults with anorectal malformations reveals significant ongoing psychosocial challenges beyond medical complications, including high rates of depression (82%) and anxiety (81%), limited workplace accommodations (24%), and employment difficulties. Findings emphasize the need for integrated psychosocial support throughout the lifespan to address educational, vocational, and mental health needs in this population.
Written by the GCMD Library team from the article.
Abstract
Purpose
Despite medical advances, individuals with anorectal malformations (ARM) experience significant medical and psychosocial challenges due to their complex conditions. This study aimed to obtain the perspectives of adults with ARM throughout their lifetime regarding their medical, school/vocational, and psychosocial functioning.
Methods
A 40-item survey was administered electronically to members of an international ARM Facebook group (56% response rate; n = 125). Survey items included demographics, medical diagnosis/treatment, school/workplace accommodations, mental health diagnosis/treatment, and life perspectives.
Results
Majority of respondents were female (73%), aged 25–34 years (31%), Caucasian (92%), US residents (60%), and attended public school (86%). 53% of respondents are currently employed. 32% of respondents received school-based accommodations and 24% at work. 58% of respondents had a mental health diagnosis, with depression (82%) and anxiety (81%) being the most common.
Conclusions
Results suggest that adults with ARM experience ongoing difficulties related to schooling, employment, and mental health, in addition to medical complications. It is becoming increasingly clear that improving patients’ physical well-being is not enough; psychosocial concerns must also be addressed directly. Thus, it is important for clinicians to be aware of and partner with psychosocial providers to support these challenges associated with ARM, to maximize patients’ overall health and well-being.