# Transitional Care in Anorectal Malformation and Hirschsprung's Disease — GCMD Library

<p>New article you should know from th Journal of pediatric Surgery by Dr. Cecilia Gigena</p>

<p>"Transitional Care in Anorectal Malformation and Hirschsprung's Disease: A Systematic Review of Challenges and Solutions"</p>

<p><strong>Authors:</strong> Josip Plascevic, Shaneel Shah, Yew-Wei Tan</p>

<p><strong>Full article:</strong> <a href="https://gcmd.co/3WHxvKX">https://gcmd.co/3WHxvKX</a></p>

<p><strong>Background</strong></p>

<p>The literature on transitional care in anorectal malformation (ARM) and Hirschsprung's disease (HD) is diverse and heterogeneous. There is a lack of standards and guidelines specific to transitional care in these conditions. We aim to establish and systematically categorize challenges and solutions related to colorectal transition care.</p>

<p><strong>Methods</strong></p>

<p>Systematic review of qualitative studies from MEDLINE, EMBASE, PubMed and Scopus databases (2008–2022) was conducted to identify the challenges and solutions of healthcare transition specific to ARM and HD. Thematic analyses are reported with reference to patient, healthcare provider and healthcare system.</p>

<p><strong>Results</strong></p>

<p>Sixteen studies from 234 unique articles were included. Fourteen themes related to challenges and solutions, each, are identified. Most challenges identified are patient related. The key challenges pertain to: (1) patient's lack of understanding of their disorder, resulting in over-reliance on the pediatric surgical team and reluctance towards transitioning to adult services; (2) a lack of education and awareness among adult colorectal surgeons in caring for pediatric colorectal conditions and inadequate communication between pediatric and adult teams; and (3) a lack of structured transition program and joint-clinic to meet the needs of the transitioning patients. The key solutions are: (1) fostering young adult patient's autonomy and independence; (2) conducting joint pediatric-adult transition clinics; and (3) ensuring a structured and coordinated transition program is available using a standardized guideline.</p>

<p><strong>Conclusion</strong></p>

<p>A comprehensive framework related to barriers and solutions for pediatric colorectal transition is established to help benchmark care quality of transitional care services.</p>


Type: video · 1 min · posted 2024-07-29
Canonical: https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940

## Chapters
- [0:00](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=0) Transitional Care Challenges and Solutions in Pediatric Colorectal Conditions

## Statements
- "A systematic review was conducted in the UK to establish and categorize challenges and solutions related to transitional care in colorectal patients" — Cecilia Gigena (epidemiological) [0:10](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=10)
- "The systematic review included 234 studies" — Cecilia Gigena (epidemiological) [0:23](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=23)
- "The first challenge identified was patients' lack of understanding of their own pathology" — Cecilia Gigena (clinical) [0:28](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=28)
- "The second challenge was the lack of education and awareness of adult surgeons about pediatric colorectal pathologies" — Cecilia Gigena (clinical) [0:34](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=34)
- "The third challenge was the lack of an instructional transitional care program" — Cecilia Gigena (clinical) [0:44](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=44)
- "The first proposed solution was to foster young adult patients' autonomy" — Cecilia Gigena (guideline) [0:46](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=46)
- "The second proposed solution was to conduct joint pediatric adult transitional clinics" — Cecilia Gigena (guideline) [0:46](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=46)
- "The third proposed solution was to create a structured and coordinated transition program" — Cecilia Gigena (guideline) [0:46](https://library.globalcastmd.com/watch/transitional-care-in-anorectal-malformation-and-hirschsprung-s-disease-8940?t=46)

## Transcript
Do you have a transitional care coordinator for colorectal patients in your hospital? Hi, I'm Cecilia Jigena from Cincinnati Children's Hospital, and I think this is an article that you should know about. This is a systematic review done in the UK and their aim was to establish and categorize challenges and solutions related to transitional care in colorectal patients. They included 234 studies and established 3 challenges and solutions. The challenges were, first, the patient's lack of understanding of their own pathology. The second one was the lack of education and awareness of adult surgeons about pediatric colorectal pathologies, and the third was the lack of an instruction. Transitional care program. So for the solutions they proposed, first, to foster young adult patients' autonomy, 2, to conduct joint pediatric adult transitional clinics, and 3, to create a structured and coordinated transition program. Let us know what you think and stay tuned for more articles that you should know about.

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Not medical advice · citation policy: https://library.globalcastmd.com/ai
