EUPSA/ERNICA · What is Gastroschisis? An ERNICA animation for parents and families
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Video2 min·Published Dec 2023Older

What is Gastroschisis? An ERNICA animation for parents and families

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What the experts said0 expert statements · 23 host summaries
Gastroschisis occurs when the front of a baby's belly does not form properly during early pregnancy, resulting in an opening on the right side of the belly button through which the intestines pass.
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Gastroschisis is classed as a rare birth defect.
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The cause of gastroschisis is unknown.
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Gastroschisis may mean that the intestines are not able to work properly.
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Gastroschisis is not usually associated with other malformations.
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A diagnosis of gastroschisis can be made before birth using ultrasound.
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Many babies with gastroschisis are born prematurely (before 37 weeks).
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Ongoing care for babies with gastroschisis should be provided at a specialist center by a dedicated team of professionals with knowledge and experience of the condition.
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Gastroschisis is a serious condition and can be life threatening for the baby before and after birth as a newborn.
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Most babies with gastroschisis do survive.
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Some babies with gastroschisis may be transferred to a dedicated intensive care unit if they are born prematurely.
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After birth, the baby's intestines are wrapped in a sterile bag to avoid damage.
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Babies with gastroschisis receive the fluid they need via a tube that delivers it through a vein.
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When the baby is stable, surgery is performed to place the intestines back in the belly and close the opening.
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Surgical repair can be done in one operation (primary repair) or in several steps (staged repair), depending on the baby's circumstances and severity of gastroschisis.
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Further surgery may be needed if other malformations are also present.
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While the intestines recover, the baby receives feed through a tube that delivers it through a vein, a method called parenteral nutrition.
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Hospital stay duration differs depending on the severity of gastroschisis, any complications, and how well the baby responds to treatment, often ranging between 2 to 10 weeks but may be longer.
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Follow-up care by a multidisciplinary team (MDT) of different clinical specialists is required to monitor the baby's growth and development.
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Some babies may experience ongoing difficulties that require different types and levels of care.
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Identifying any complications or difficulties early is very important.
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Some babies may require parenteral nutrition for a longer period to promote continued growth.
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Peer support can be accessed through patient and family support groups.
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