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Update Course Rewind 2025: Hirschsprung + ARM: Rare but Real

Video Published 2026-05-21 Updated 2026-06-10

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Topic Overview

This presentation examines the rare co-occurrence of Hirschsprung disease and anorectal malformations, found in less than 2% of cases but more common in patients with trisomy 21. Single-center data shows ganglion cells present in 91% of rectal fistula specimens, with 4% having both diagnoses—predominantly in chromosomally abnormal patients.

Key Takeaways

  • Concurrent Hirschsprung disease and ARM occurs in <2% of cases, but rises to higher rates in patients with trisomy 21
  • Hypo/absent ganglion cells in rectal fistula tissue during PSARP doesn't automatically indicate Hirschsprung disease
  • Chromosomal anomalies (trisomy 21, VACTERL) are strong risk factors for dual ARM + Hirschsprung diagnosis
  • Consider Hirschsprung workup in complex ARM patients with chromosomal anomalies who fail standard bowel management
  • 91% of rectal fistula specimens show ganglion cells at baseline; absence requires clinical correlation, not reflex diagnosis

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