CAPS - Educational Outcomes in School Age Children with a History of Hirschsprung’s Disease - Michael Cowap

Hirschsprung disease is a loss of innervation to a section of bowel

Hirschsprung disease is sometimes associated with genetic syndromes such as Down syndrome

Hirschsprung disease can be fixed but requires surgery that involves cutting that section of bowel out

Children with Hirschsprung disease may have ongoing issues with constipation, incontinence, and occasional abdominal pain after surgery

The study compared children with Hirschsprung disease to their peers in real-world assessments

While there may be some delay in the beginning in the preschool assessment, once children with Hirschsprung start school, there does not appear to be a significant difference between them and their peers in assessments that include reading and number skills

There is not a significant difference in graduation from grade 12 between children with Hirschsprung disease and their peers

Neurodevelopmental outcomes are just as important to parents as what surgeons do directly in the operating room

Data was only specifically from Manitoba and using a Manitoba health repository

The standardized tests are standardized within each province

The data includes public school, private school and homeschooling

First Nations and indigenous schools were not included in the repository

The study did not account for how the disease is affecting each child individually

Patients were matched based on being male and socioeconomic status

The data was from 1997 to 2012

The study did not include a subset analysis of long segment Hirschsprung disease