Neurodevelopmental & Psychosocial Outcomes

Background: The survival rate of infants and children with intestinal failure is increasing, necessitating a greater focus on their developmental trajectory. Aims: To evaluate neurodevelopmental outcomes in children with intestinal failure

Background: Survival rates of infants with intestinal failure (IF) are increasing, yet multiple medical factors may impact development. Aims: This study examines neurodevelopmental outcomes at 12-15 and 26-32 months corrected age in a cohor

Background: Improved survival in pediatric intestinal failure (IF) necessitates a focus on neurodevelopmental outcomes. Existing cross-sectional research demonstrates increased risk of developmental delay. This novel study explores longitud

Despite a focus on neurocognition in pediatric intestinal failure (IF) to date, we examined social-emotional and adaptive functioning. Children (N = 63) in our IF rehabilitation program underwent neuropsychological assessments including car

Objective: Survival rates of children with intestinal failure have increased; however, associated co-morbidities may affect long-term motor developmental outcomes. This study evaluates motor proficiency and generalized self-efficacy toward

Background: Improved survival rates for children with intestinal failure (IF) have resulted in an increased population of children receiving long-term parenteral nutrition (PN). Our objective was to determine burden on caregivers of childre

Objective: To measure the time that caregivers spend on tasks related to providing care to their child with intestinal failure receiving home parenteral nutrition (PN). Study Design: We conducted an exploratory cross-sectional study of care

Children with intestinal failure (IF) receiving long-term parenteral nutrition (PN) require significant medical care, including high-risk procedures such as accessing a central venous catheter, with the majority provided by family caregiver

Dr. Paul Wales, Surgical Director of Intestinal Rehabilitation at Cincinnati Children's, discusses the significant responsibilities families undertake when caring for patients on home Total Parenteral Nutrition (TPN). He highlights tasks li