Care transition from a pediatric intestinal rehabilitation program to adult care and the risk of all‐cause mortality: A retrospective cohort study
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In brief
In brief
Retrospective study of 46 intestinal failure patients found those transitioning to adult care at age 20 had 33% mortality vs 5% for those remaining in pediatric programs, with median time to death of 12 months post-transition. Findings highlight critical vulnerability during care transition despite similar baseline characteristics between groups.
Written by the GCMD Library team from the article.
Statements in this article
Transitioning intestinal failure patients to adult care remains challenging because of a lack of specialized programs.
The study included patients with intestinal failure who turned 20 years old between 2013 and 2022 with follow-up through February 2025.
Patient characteristics including demographics, anatomy, nutrition, and comorbidities were collected at the age of 18 years.
Sixty-eight percent of the 46 patients included had short bowel syndrome.
Nine patients (20%) had an ostomy at age 18.
Fourteen of 46 patients (30%) continued to receive parenteral nutrition at age 18.
Twenty-seven patients (59%) transitioned to adult care at a median age of 20.8 years (interquartile range 3.8).
No demographic, nutrition, or comorbidity differences were observed between patients who transitioned to adult care and those who continued at the pediatric institution.
Higher mortality rates occurred among patients who transitioned care compared with patients continuing care at the pediatric institution (33% vs 5%; P = 0.02).
The median time duration to death after transition was 12 months (interquartile range 43.5).