Intradyadic Correlation Between Parent-reported and Child-reported Quality of Life in Patients With Anorectal Malformation and Hirschsprung's Disease in Comparison to Healthy Controls

In brief

This study examines how parent and child perspectives on quality of life align in pediatric patients with anorectal malformation and Hirschsprung's disease versus healthy children. Understanding parent-child agreement in QOL reporting helps clinicians interpret outcomes and tailor care for these chronic colorectal conditions.

• Parent-proxy and child self-reports of QOL often differ in ARM and HD patients, highlighting need for both perspectives
• Quality of life assessment should include direct child input when possible, not rely solely on parent reporting
• Agreement patterns between parent and child QOL reports may differ from healthy controls in chronic GI conditions
• Discordance in QOL perception can inform clinical discussions about disease impact and treatment goals

Written by the GCMD Library team from the article.