SYSTEMATIC REVIEW ON QUESTIONNAIRES REPORTING BOWEL FUNCTION AND HEALTH-RELATED QUALITY OF LIFE IN PATIENTS WITH HIRSCHSPRUNG DISEASE

jpedsurg.org

Impaired bowel function and reduced health-related quality of life (HR-QoL) are common after surgery for Hirschsprung disease (HD). There is yet no agreement on how to report these outcomes. This systematic review aims to describe which questionnaires, their properties, and how frequently they are used to report outcomes. Based on this, we recommend questionnaires to be used in future studies.

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Article · Jun 2025 · 1 min read

In brief

This systematic review evaluates questionnaires used to assess bowel function and quality of life in Hirschsprung disease patients after surgery. The authors analyze measurement tools and their properties to recommend standardized instruments for future clinical research, addressing the current lack of consensus in outcome reporting.

Bowel dysfunction and reduced quality of life are common long-term complications following Hirschsprung disease surgery.
No standardized questionnaires exist for reporting bowel function outcomes in Hirschsprung patients, limiting study comparability.
This systematic review identifies existing questionnaires and their measurement properties to guide future outcome reporting.
Standardized outcome measures are needed to enable meaningful comparison across Hirschsprung disease treatment studies.
The review provides evidence-based recommendations for questionnaire selection in future Hirschsprung disease research.

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